Let Me Introduce Myself.
You can see frrom this
photograph that I look just like every other little boy that you will see as
you go about your daily business, and why shouldn't I be.
Because I was
born with Partial Trisomy 13 Deficiency, it doesn't make me any different.
OK, I may have some eyesight issues and my speech may be a little bit
different to others of my own age, but I more than make up for that by being
more advanced in some areas than other kids of a similar age.
Through
this website, I hope to reveal to you who and what I am, what happens in my
life on a daily basis, what I have been through so far in my life and what
exactly Trisomy 13 Deficiency is to those that have never heard of it, and what
lasting effects it has had on me. |
Hey, this is me when I was out with my mum, dad and little sister
Lacee on holiday in Egypt, taken back in 2011.
"Now Where's that Baloon Gone to ?" |
Information Introduction
Trisomy 13 Deficiency is
not quite as rare as a lot of you may think, and in fact, statistics reveal
that 1 in 16,000 newborn children will become affected by this.
Yes it
makes life difficult for me and my mum & dad at times, but I am not an
alien as some people may think. I have feelings just like anyone else and my
thoughts are identical to those that you have.
Hopefully through this
website, I will be able to explain the difficulties that I have on a daily
basis, and what my mum and dad have to go through, in order to just see me
through a normal day in my life. I have various difficulties, the most apparent
being identification of people beyond a distance of a few metres, communicating
with them and explaining myself, that's all. |